
Finding Hope Through Research: Christian’s Leukemia Journey
Christian Vinci’s leukemia journey highlights the importance of pediatric cancer research and how clinical trials can improve treatment for children today and in the future.

Behind every breakthrough, every milestone and every moment of joy is a child, a family and a story worth sharing. Meet a few of the incredible kids and teens who inspire the work of the Courage of Carly Fund every day.

Silas was first diagnosed with ependymoma at three years old and had a recurrence at four. He likes to play in the sandbox, go to swim class, dance and taekwondo. He also likes to cuddle up and have a movie night!
Courage means to be brave, strong, and to fight like a superhero.

Miliani was diagnosed with neuroblastoma at seven years old. She loves science experiments, art, music and beauty care.
Persevering through this journey with courage and positivity and continuing to get up and fight each day with sassy spunk!

Myez was diagnosed with sickle cell disease type SS at birth. She loves arts and crafts, science nd playing with her dogs.
Courage to me means doing something even if you’re scared.

Madelyn was diagnosed with pilocytic astrocytoma at 12 years old. She likes to spend time with friends and family. “It makes me happy to be with people I love,” said Madelyn.
Courage means never giving up, even when life gets hard. Preserve through challenges, even if it is something simple. Courage is being brave enough to not give up.

Kaden was diagnosed with sickle cell disease at birth. He likes playing flag football and basketball with his friends. He also enjoys his summer camp and after school program and Urban Air Trampoline and Adventure Park.
To me courage means to keep pushing and enjoying the things I like to do even though I have sickle cell.

Kailanys was diagnosed with Wilms tumor at two years old. Her parents describe her as very happy and friendly. She likes to dance and is adventurous.
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Jackson was diagnosed with B-cell Acute lymphoblastic leukemia at eight years old. I loves fishing and any outdoor activities. “My biggest fish was a 15# sheephead. And the smallest was a 1/2 oz creek Chubb,” said Jackson.
Courage means thinking of other things when I am having a bad time
When a child or young adult (ages 21 and under) receives care through Roswell Park’s Pediatric Hematology Oncology Program, they become eligible to participate in Courage of Carly programs and events. From their very first visit, patients and families have access to enhanced in-clinic support, including play spaces, comfort items and other resources designed to make treatment days a little easier.
Families who choose to become Courage of Carly members join a community built on courage, compassion and hope.


Members receive invitations to year-round events, supportive programs and meaningful experiences for patients, Super Siblings and caregivers that bring joy, create lasting memories and remind families they’re never alone. Whether you attend every event or just one, we’re here whenever you need us.

Having a kid with cancer, your whole world is turned upside down. But there’s research being done and there’s funding for it. We’re so appreciative that people give; they don’t know how much their generosity impacts us.
– Amy, Jack’s mom

We love it here. We love everybody. You don’t want to be here, of course, but they make it really nice.

Christian Vinci’s leukemia journey highlights the importance of pediatric cancer research and how clinical trials can improve treatment for children today and in the future.

Five years after beating Burkitt lymphoma, Riley Greene celebrates survivorship, sharing his journey through cancer, COVID-era treatment, and resilience.

Students across Western New York are turning compassion into action by choosing to support kids facing cancer through Courage of Carly.

Meet the mom’s behind Courage of Carly’s first IceCycle team, with funds designated specifically for childhood cancer research and patient programming.

Supporting the Courage of Carly Fund means you are helping to establish more effective and less invasive treatments for childhood cancer.

When little Carly Collard Cottone founded the Courage of Carly Fund (called Carly’s Club then), she knew she was going to help kids just like her.