Creating Hope for Our Children

The Courage of Carly Fund gives children with cancer and blood disorders the fighting chance they deserve. Providing everything from unforgettable moments and family events to financial support, we offer hope and a little bit of extra happiness to children, teens and their families.

Funding Critical Research

The world-renowned physicians and researchers at Roswell Park Comprehensive Cancer Center often have ideas that could change the course of treatment for children and lead to cures. But without funding, their ideas would never get off the ground. That’s where you come in. Donations allow researchers to take their ideas and turn them into reality so that more lives can be saved.

Donations to the Courage of Carly Fund recently provided seed funding to launch three new research projects at Roswell Park aiming to:

  • Identify genetic determinants of treatment-related toxicities and outcomes for patients with childhood acute lymphoblastic leukemia.
  • Improve the survival rate of pediatric patients with pediatric rhabdomyosarcoma through a new therapeutic intervention.
  • Determine if specific genetic mutations cause the spread of synovial sarcoma, one of the most common solid tumors in children, adolescents and young adults.

Donations to the Courage of Carly Fund are also allowing Roswell Park to explore new therapeutic options that could lead to new standards of care, such as:

  • Genetic testing: Donations are covering the cost of a potentially lifesaving diagnostic test for pediatric patients who have failed standard treatment for their cancer. This test may help identify personalized therapies based on the patient’s genetic makeup.
  • Wellness & Integrative Medicine Program: Charitable gifts are enabling Roswell Park to provide nutrition counseling and complementary therapies, such as acupuncture and reflexology, which help manage patients’ symptoms during and after treatment.

Offering Support to the Whole Family

When a child is diagnosed with something as serious as cancer or a blood disorder, the entire family is affected. At Roswell Park, our pediatric psychosocial team works in tandem with our talented clinical team to offer not only excellent medical care, but also the crucial emotional and psychosocial support needed by each member of the family.

The Courage of Carly Fund enables Roswell Park to provide a number of support programs, including:

  • Family counseling
  • Therapeutic play and art programs
  • In-room and clinic visitations
  • Educational advocacy
  • Beads of Courage and the Aflac Duck
  • Family comfort packages
  • End of treatment celebrations
  • Teen wellness program

MEANINGFUL MOMENTS

The Courage of Carly Fund hosts monthly events and activities for patients and their families.

These family fun activities take our patients’ and families’ attention away from the stresses, anxiety and challenges of treatment. Best of all, these programs are free, thanks to our community partners and donors.

  • Build-A-Bear Workshop
  • Dave and Buster’s
  • Holiday Party
  • Teen Prom
  • Buffalo Sabres meet-and-greet experiences
  • Concerts and sporting events
  • Paint nights
  • Bowling
  • Mini golf

Partnerships Provide New Capabilities

The Roswell Park Oishei Children’s Cancer and Blood Disorders Program treats children using complete, state-of-the-art technology while staying focused on a family-centered approach. The program offers our pediatric patients the expertise of a joint program based at Roswell Park — the only National Cancer Institute-designated comprehensive cancer center in New York State outside of New York City — and John R. Oishei Children’s Hospital, where the Ralph C. Wilson, Jr. Hematology/Oncology Patient Suite on the 12th floor has been dedicated to meet the needs of young cancer and blood disorders patients, including an 11-bed inpatient unit. Pediatric outpatients are treated at Roswell Park in the Katherine, Anne and Donna Gioia Pediatric Hematology Oncology Center.

The new outpatient program is connected to the Jacobs School of Medicine and Biomedical Sciences at the University at Buffalo, as well as UBMD Pediatrics, which has 13 additional subspecialties on the Buffalo Niagara Medical Campus.

Thanks to this partnership,

we are now able to offer new capabilities and specialized services, such as:

  • An expanded bone marrow transplant program for children of all ages. This gives our youngest patients access to transplants at Roswell Park for the first time.
  • An expanded blood disorder program to treat nonmalignant disorders such as sickle cell disease, anemias, bleeding conditions and thrombosis (blood clots).
  • The Pediatric Experimental Therapeutics Program, which offers new, advanced, experimental treatments, therapies and medicines to children with all types of cancer.

2020 Courage of Carly Fund

stay connected

Office Address

Elm and Carlton Streets
Buffalo, NY 14263

Phone number

716-845-4100

EMAIL

courageofcarlyfund@roswellpark.org